Today is the first night I’ve been awake in several nights! For this I’m thankful! For all of my friends and family who have been praying for sleep, let me tell you, I’ve been sleeping! I have slept more in the last 4 days than I have in months! My only description for it would be “wonderful!” I do believe that all of my most recent problems have merely stemmed from fatigue from the insomnia. I know that the insomnia is caused from the disease, but by itself it’s enough to put oneself through the wringer! I’ve done a lot of researching concerning my blackouts and going unconscious, all of which have stopped since I’m sleeping and feeling rested. I’ve learned that there are a couple of things that could be causing this, one related to my dysautonomia triggered by fatigue and one related to my migraines also triggered by fatigue. I believe the migraines are the culprit considering the headaches involved. But Praise God! I have slept for the last 4 days. Not only at night for the most part but I nap and nap deeply several times during the day. I look like one of the elderly in my recliner. I have my lap blanket, my shoulder blanket and I’m all snuggled up snoozing away! Tonight is the first night I’ve struggled with being awake, but I’ll get some sleep before Eric leaves for work in the morning hopefully in the morning.
It’s been an interesting couple of weeks. I’ve had the medical issues with the blackouts of course. I stayed with my mother-in-law from Sunday night until Friday night. The first black out she personally witnessed she was admittedly scared. The last one, my daughter woke her in the middle of the night and I was told later that she just let me lay there and told my daughter that “It’s ok, mommy will wake up eventually” and they just sat there waiting. So after a week, she had grown accustomed and tired. On Friday evening they packed me up and shakily I made it to Tannehill Park to the cabin my parents had rented for the weekend. By the time I arrived I was nauseated, gagging, and weak and then my dad, in the camping spirit, lit a fire in the fireplace and almost suffocated me! *Smile* We got the doors open and eventually the coughing and stomach spasms stopped and I got cool enough to sit with the family and we at Bob Sykes for supper. It was a good meal but I mostly enjoyed the company!
The next morning, I decided it easier to get my dad to carry me home to shower rather than having Eric find all my thing and lugging my shower chair to the cabin for one night, so I went home and got dressed and we headed back to the cabin. By now my dad had lunch fixed. Bless his heart he had grilled burgers in sleeting rain! But they were good! During the meal I began to feel the room spin and it never stopped. Unfortunately when you “gotta go” you “gotta go” so Eric helped me to the bathroom. I had almost made it halfway back to the living room when my strength was gone and I hit the floor like a ton of bricks. Eric is great at helping. I came too with a pillow under my head and a blanket covering me. They got me to the couch where I slept for about 4 hours. This was the last time I believe I’ve blacked out lately.
That evening dad and the kids made a campfire and we roasted marshmallows! I haven’t done this in years, so I made them get me out there, but eventually told them I had to make like a geriatric and admit I was done in. The kids enjoyed themselves despite the cold. The kids opened a few gifts, and played a bit and we pretty much called it a night. We had our Christmas play at church the next morning, and Eric and Serena were in it and I was supposed to sing if able. So an early morning was ahead of us.
Mom, Dad, and my nieces and nephews made it to the mornings play. We spoke to some church family after service, made our picture, and then went to Cracker Barrel as we always do when my parents visit. I hated saying goodbye yet again, but I always enjoy spending time with my family! I’m looking forward to being able to travel again and having an old kind of Christmas again, where we all sit around mom and dad’s living room and mom and dad sit all close together and the kids are all in the floor and their is wrapping paper everywhere! It’s been way too long, but in the mean time I’ll settle for these cabin get aways, because after all, it’s about loving my family and being together no matter where you must be! Merry Christmas to my family down in Georgia! I love you all and to those I didn’t get to spend Christmas with, I miss you and I hope you Christmas is one to remember as mine was!
Mom, Dad, and my nieces and nephews made it to the mornings play. We spoke to some church family after service, made our picture, and then went to Cracker Barrel as we always do when my parents visit. I hated saying goodbye yet again, but I always enjoy spending time with my family! I’m looking forward to being able to travel again and having an old kind of Christmas again, where we all sit around mom and dad’s living room and mom and dad sit all close together and the kids are all in the floor and their is wrapping paper everywhere! It’s been way too long, but in the mean time I’ll settle for these cabin get aways, because after all, it’s about loving my family and being together no matter where you must be! Merry Christmas to my family down in Georgia! I love you all and to those I didn’t get to spend Christmas with, I miss you and I hope you Christmas is one to remember as mine was!
